Monday, July 11, 2011

Become an MS Activist

More than 25,000 people throughout Pennsylvania are living with Multiple Sclerosis, a chronic and debilitating disease that attacks the central nervous system. My grandmother is one of those 25,000.

As her MS has significantly worsened over the past few years, I decided that I wanted to help the MS cause in any way possible.

My first MS volunteer opportunity was with my aunt and cousin at the 2010 MS Mud Run in Brandywine, PA. It was hot, humid, and, frankly, a bit painful – and I wasn't even running it! I knew, though, that if my grandmother could deal with years of pain and discomfort, who was I to complain after a single day? I considered taking a single day out of my life to join the MS movement and raise awareness the very least I could do.

A year later, I found myself searching the Central Pennsylvania Chapter website for more volunteer opportunities and discovered the opportunity to intern under the umbrella of Public Policy and Social Media. Most college students would balk at the circumstances: I'm not getting paid, nor am I getting any college credit. Yet I decided to approach the internship as yet another volunteer opportunity, so here I am blogging about being an MS Activist.

I don't commit every weekend to participating in volunteer events. I don't run every race or walk every walk. As a student, I don't have much money to donate. How is it possible that I, who only does a limited amount of advocacy work, consider myself an activist?

Because it's simpler than you think.

Any act of advocacy, big or small, can significantly impact the lives of those living with MS. Becoming an activist doesn't mean you have to bike 30 miles or donate a large sum of money (although you're more than welcome to!). In fact, smaller acts can have just as lasting of an impact.

Easy ways you can be an MS Activist:

-        Write, email, or call your local government official and encourage them to do something about the lack of funding for MS research
-        Distribute the MS Activism brochure “Federal Advocacy” around your neighborhood
-        Read and post comments on MS Activism blogs
-        Write a letter to the editor or call local talk radio programs to make a public call for action
-        Attend a town hall meeting to discuss an MS issue recommended by your chapter advocacy staff
-        Sponsor a participant in a MS fundraiser – no contribution is too small.

Mahatma Gandhi once said, “Be the change you want to see in the world.” With state funds decreasing and the needs of those with MS increasing, it falls upon everyday citizens to act as advocates. As busy as we are in our day-to-day lives, becoming an activist can take an insignificant amount of time, but make a huge difference.

Visit msnbc.com for breaking news, world news, and news about the economy


Click to see FOX News meterologist Janice Dean share her story of living with MS with NBC’s TODAY on June 22, 2011.

PA's Collaborative Action Network is now blogging!

Welcome to the National MS Society’s Pennsylvania Collaborative Action Network (PA CAN) blog page! Focused on issues important to people living with MS in Pennsylvania, we set up a blog to share news and provide advocacy information.
We are the Pennsylvania Collaborative Action Network (PA CAN), a collaboration of people who want to do something about Multiple Sclerosis now. Led by the three Pennsylvania chapters of the National MS Society (Western Pennsylvania, Central Pennsylvania and Greater Delaware Valley), the PA CAN represents more than 25,000 people living with MS throughout the state. Since MS is a disease that affects the entire family, however, we estimate the representation of the PA CAN to be closer to 57,000 Pennsylvanians.
In the course of this blog, we will be providing information about important issues facing individuals with MS like:
Health Care
Disability Rights
Long Term Care Services
Respite Services
Adult Protective Services
Research

We will be sharing information about advocacy work and ways you can raise awareness. For those interested, there will be opportunities to guest blog about important MS issues.
For more information, check out our activist website.
If you are interested in guest blogging, or would like to get involved, send us a message or contact Jennifer Strayer of the PA CAN at: (717) 586-8505 or Jennifer.Strayer@nmss.org